I have this issue where I say something along the line of “Oh I hope to live that long”, and because I’m (very high functioning) handicapped people think I have a shortened life expectancy and I’m slowly dying of a terminal disease.
I don’t understand why people oppose my inclination to shove people who think this way off a cliff. It’s like cleaning up trash.
i try really hard to be sensitive and understanding about people who have to work their asses off to get by, i’ve been there and worse
“This is one example of why it’s impossible to have pride in your disability when other disabled people refer to you and your particular disease as “some crazy shit”
Once again, I am used as an example of an extreme an undesirable case of disability, thus alienating me even within the disabled community. So how should I feel pride in my heritage and its tainted blood that leaves me as a poster girl for the worst kind of cripple?
Not that I disagree with what the OP is trying to say, I’m just pointing out one of many examples I’ve made of each day, usually by people arguing for their own rights to dignity and civil rights.”
Are you fucking kidding me?
I must be confused. No- I GENUINELY hope I am reading this wrong.
Let me just address specifics because I’m trying to contain my urge to just tell you where to shove it.
“This is one example of why it’s impossible to have pride in your disability when other disabled people refer to you and your particular disease as “some crazy shit”
First, why the fuck do you even want to “have pride in your disability”?FUCK THAT.
YOU ARE NOT YOUR DISABILITY.
Take pride in YOURSELF.
Read on.
“…I am used as an example of an extreme an undesirable case of disability, thus alienating me even within the disabled community. So how should I feel pride in my heritage and its tainted blood that leaves me as a poster girl for the worst kind of cripple?”
I don’t know you, I don’t know what your disease is, therefore it’s clear to me this was in no way directed at YOU. That said, as far as I know, there is no real “community” for the mentally ill individuals I represent- those who don’t have any real support of family or organizations, and who are suffering symptoms that agitate social interaction. So again, this does not apply to you.
“Not that I disagree with what the OP is trying to say, I’m just pointing out one of many examples I’ve made of each day, usually by people arguing for their own rights to dignity and civil rights.”
That’s nice to toss in that bit about how you aren’t saying you “disagree with what the OP is trying to say” but not nice enough. If you’re so concerned with being alienated by your “community” maybe you should take a good long look at WHY. Have you ever considered it’s not your “extreme undesirable disability” but rather YOU? I may be going out on a limb here, no pun intended, but seeing how you seem to think “having pride” is your solution to whatever you’re trying to achieve shows you have a need to remove yourself from your own sense of pride. So what else in your life are you not taking responsibility for? I’m not saying this to be rude at all- I’m saying taking responsibility for the good and the bad in yourself and your life and not putting it onto other’s actions, words, or situations is going to give you ten time more pride than embracing your “tainted blood” and heritage.If anyone out there reading this takes it personally, that’s your problem BUT I do want to clarify the original statement being confronted here:
I did not specify what I meant by it that AT ALL- and not only that, the original quote is “missing limbs OR some crazy shit”
OR. As in, something else. I said missing limbs first because my point in making the post and in using that terminology (“some crazy shit”) was not directed at the disabled, but to level with people who aren’t. I said missing limbs because for an able bodied person, it is an “eye opener” and further, anything worse than that- aka “some crazy shit” I imagine would be even more thought provoking for someone with no disability.
I don’t know you but based on these statements alone I’ll tell you and anyone with a similar mindset straight up it will be impossible to take pride in ANYTHING as long as you keep shifting blame. Trust me- I’m speaking from experience.
Finally, I think it’s really fucked up that you are using your peers to make examples for your personal agenda- ESPECIALLY “people arguing for their own rights to dignity and civil rights.”
You need to find a better way to find your way through this. As a humanitarian I am sorry for your struggles and want to be empathetic but truthfully, you offended the hell out of me and I think you owe me and anyone else you’ve USED as an “example” in this way a BIG apology.
The comments I made about having pride in disability stems from this post and instead is restating it I suggest that you read it on your own.
I understand you don’t know me but I think my readers will recognize that I went above and beyond what I usually do to be respectful of your experience and your rant–post. It’s become obvious to me that my uncharacteristic behavior was wasted on you because you are bat fucking crazy.
You are so fucking crazy that it would be a waste of time to address your ramblings anymore than I already have but I can’t bring myself to post this without confessing how big of a laugh I got out of you calling yourself a humanitarian.
If anything, that shit should qualify you for government assistance.
I really want to buy one of those “my eyes are up here^^^^” shirts.
Not to divert eyes from my boobs, to divert them from my wheelchair for all the stupid fucks who so obviously gawk at it
like
come on
I know you’re going to look at it
But please refrain from making eye contact with my chair instead of, you know
my actual eyes
OMG She’s Standing!!! :)
I’m still surprised how two episodes ago, she was making no progress and was in a wheelchair, and now she is walking.
Okay…..not so fucked……
I have just been reliably informed by a member of the medical profession that a disabled person does not and should not have a sex life. Yeah I pretty much laughed in their face and told then exactly what a disabled person should be allowed …..every-fucking-thing an able-bodied person is entitled to…..no questions, just accept the fact.
I cannot believe and refuse to accept the opinions of people who claim to know what is best for me when they have no fucking idea of who and what I am. As if I am going to allow a virtual stranger to dictate my life and on what terms I can live it. I refuse to be side-lined and belittled over this. Ignoring me and my questions are only going to make me fight hard and shout louder…….on my good days I am obnoxious, loud, rude, crude and self-assured…..on my bad days I am worse.
The world we inhabit is not fair, nice, cosseting or accepting. Our world is judgmental, harsh, abrasive, violent, demeaning and insulting……and this fucks me off. The world needs to change……we need to change……yeah I’m on my soapbox now but so what? Who really gives a fuck? Not the twat who cracked be across the back of my head with a shopping basket because she didn’t see me directly in front of me in the checkout line? Not the cunt who kicked me in the face trying to step over my lap trying to get passed me and swore because I was in his way…..his way??????…what the fuck did he think I was doing? Not the complete idiots that take the brakes off my wheelchair and physically move me because I am in their way……their way????…..I was shopping and filling a trolley at the time…….
I’m kind of shocked at all the stories I’m hearing of medical professionals telling disabled people they can’t have sex lives. Should these be people interested and dedicated to our quality of lives? When the fuck is going on?
Yep…totally fucked…………
There is an undercurrent within my family life at the moment……the family that was scrambling and demanding for me to follow their ideal paths for my life have become little more than whispers. I find it very strange…..my wheelchair seems to enforce their belief that I am less than I was before….except I still have the same responsibilities as before..nothing has truly changed except for the physical manifestation of my overall health.
My specialists, consultants, nurses etc. were all shocked when I informed them that the wheelchair will change nothing within my life and I intend to carry on as normal as possible for me. Granted I will need to have more than a few items commissioned for my dungeon that I can operate from the ‘chair…..a disabled Domme…..apparently I am now a rarity….I am very aware that in all likelihood I will be training more than anything else. My work ethic is pretty much unchanged and working for 72 hours straight before I sleep will continue without a problem.
The biggest problems I foresee are numerous and humorous…just let that one go…..just leave it unsaid…..the pups (my security) have taken my lack of mobility as a opportunity to try and overstep their defined areas of operation…and I continue to harangue them back to where they should be. I will point out that I will definitely need to invest in a few more dozen silicone dildos to throw at the pups when they get too pushy - yeah my thought there is pretty much ‘what would be one of the most ridiculous and strange things to throw at the pups when they annoy me?’ - hey knives and heavy objects are an accident waiting for me to happen. Clothes was one of the unforeseen annoyances, most of my wardrobe, fuck it, my sartorial style is not suitable whilst in a ‘chair, so I need to update that and make it all ‘wheelchair-friendly’……which means some of my many New Rocks have to go for practical reasons……and so do some of my corsets and my couture pieces too…….and jewelry…..the running total so far is…..
18 rings bent or snapped
157 bangles bent, ripped, snapped and mangled
42 Bracelets snapped
……..yeah my jewelry box is hating on me at the moment…..but at least my archery bracers now have a fashion string to their bow, as it were…….I’ll get back to this later…….now it’s time for physio……..lol…..
You need a reality show, I would watch the shit out of it.
For the first time in a long time I feel whole again…
I’ve come to a peace of mind that I haven’t been able to reach before. I can breathe and feel without the added burden that has plagued me for so long. Coming to terms with my diseases and their effects on my life has been hard, but there is nothing about myself I would change. I don’t want to be an “inspiration” or “example.” I am my own, and no one else can own life the way I do mine. In the words of Whitman, there is no sweeter fat than that which sticks to my own bones. I know I still have a long road of tests, drugs, therapists, and hospitals to walk through. In fact, the rest of my life will be punctuated with them. It doesn’t matter, though. I am still whole.
